Need support?

Search our 20 resource categories and browse our rich library of articles by moms who “get it.”

UPLIFT

www.upliftwy.org

(307) 778-8686/(888) 875-4383

UPLIFT works with youths ages 0 to 26 and their families with advocacy, care coordination, support, and training.

Partners Resource Network (PRN)

www.partnerstx.org

409.898.4684/800.866.4726

Partners Resource Network (PRN) is a non-profit agency that operates the Texas statewide network of Parent Training and Information Centers (PTI). The PTI Projects are: PATH, PEN, and TEAM. The Texas PTIs provide training, education, information, referral, emotional support, and individual assistance in obtaining appropriate services.

Texas Parent to Parent

www.txp2p.org

866-896-6001/512-458-8600

Provides peer support, resource, and referral information and advocacy.

North Carolina Families United

www.ncfamiliesunited.org

(336) 395-8828

A family support and advocacy organization that links families to state and community partners for the purpose of improving the lives of children, youth, and families with emotional, behavioral, or mental health needs.

Family Support Network of North Carolina (FSN-NC)

www.fsnnc.org

800.852.0042

A division of the Family Support Program at UNC School of Social Work (http://fsp.unc.edu), the FSN-NC promotes and provides support for families with children who have special needs by putting you in touch with other parents with similar experiences, providing a "listening ear,” helping you become a volunteer Support Parent and connecting you to resources in your community. All services are free and confidential.

Family Voices of North Dakota

fvnd.org

888-522-9654/701-493-2634

A health information and education center for families who have children with special health care needs: disability, chronic illness, physical or mental health conditions. Through this national network, Family Voices provides families tools to make informed decisions, advocates for improved public and private policies, builds partnerships among professionals and families, and serves as a trusted resource on health care.

The Pathfinder Parent Center

www.pathfinder-nd.org

701-837-7500/800-245-5840/TDD: 701-837-7501

The Pathfinder Parent Center helps families and schools understand the nature and needs of a child's condition, get information on how to parent children with special needs, work together to create individualized education programs, establish positive home/school communication, participate in educational decision-making processes, and support parents.

Special Needs Resource Directory of Southwest Ohio

www.cincinnatichildrens.org

513-636-7606

Special Needs Resource Directory of Southwest Ohio, developed by the Center for Infants and Children with Special Needs at Cincinnati Children's Hospital Medical Center, includes information on issues related to advocacy, assistive technology, community services, dental care, education, employment, estate and future planning, financial assistance, guardianship, home health care, mental health, MR/DD services, nutrition resources, summer programming, therapies, transition issues, transportation, and wish-granting organizations.

Family Voices of Ohio

www.familyvoicesohio.org

614-543-9000 ext. 217

Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities and to assure high quality comprehensive, affordable, community-based, culturally competent, family centered health care to all children, but especially those with special needs

The Ohio Coalition for the Education of Children with Disabilities (OCECD)

www.ocecd.org

800.374.2806

OCECD’s programs help parents become informed and effective representatives for their children in all educational settings. In addition, youth are assisted to advocate for themselves. Through knowledge about laws, resources, rights and responsibilities, families are better able to work with agencies to ensure that appropriate services are received.

The Oklahoma Parents Center

oklahomaparentscenter.org

(405) 379-6015

The Oklahoma Parents Center is a statewide parent training and information center serving parents of children with disabilities whose goal is to educate and support parents, families and professionals in building partnerships that meet the needs of children and youth with the full range of disabilities ages birth to 26

The Oklahoma Family Network (OFN) Family-to-Family Health Information Center

oklahomafamilynetwork.org

405-271-5072/877-871-5072

A center which is devoted to family centered care and one-to-one support for families of children with special health care needs and disabilities. OFN informs and connects individuals with special health care needs and disabilities, their families and professionals to services and supports in their communities. OFN supports families in navigating the maze of health care and other supports, and provides opportunities to strengthen your community through leadership development and volunteering

The Oregon Family to Family Health Information Center

oregonfamilytofamily.org

855-323-6744/Spanish: 503-931-8930

The Oregon Family to Family Health Information Center (F2F HIC) provides information to families who are navigating the complex world of special health care needs. The Oregon F2F HIC is a network of parents who have firsthand experience raising a child or youth with a chronic health condition, developmental delay or disability, or emotional/behavioral challenges. Services include a toll-free number throughout Oregon that parents, caregivers and others can call for support, resources, and information regarding special needs. The Oregon F2F HIC also provides informational workshops, a monthly newsletter, and a website clearinghouse of federal and state programs related to special needs.

FACTOregon (Family & Community Together)

factoregon.org

888-988-3228/(503) 786-6082

FACTOregon is a family leadership organization for individuals and their families experiencing disabilities, working collaboratively to facilitate positive change in policies, systems, and attitudes, through family support, advocacy, and partnerships. FACT strives to: Strengthen the voice of Oregon families raising children experiencing disability; Connect families to families; Provide and promote peer-delivered family support; Create opportunities for meaningful collaboration.

Parent Education & Advocacy Leadership Center (PEAL)

www.pealcenter.org

412-281-4404/866-950-1040/412-281-4409 TTY

The PEAL Center serves families of children with disabilities and special health care needs. It provides information and training on education in Western and Central Pennsylvania, and on healthcare needs and support services statewide for parents and friends of children with disabilities, educators, health care and community service providers, and advocates. The PEAL Center helps families and individuals with disabilities in a variety of ways: Parent Advising, Trainings, Newsletters & Publications and an Annual Conference.

HUNE

www.huneinc.org

(215) 425-6203

HUNE is a not for profit organization that provides free bilingual English and Spanish training, technical assistance and individual assistance to parents of infants, toddlers, children, and youth with disabilities and to professionals who work with children. HUNE works to improve educational outcomes for children and youth with all disabilities (emotional, learning, mental, and physical) from 0-26 years of age. HUNE provides many kinds of programs such as Early Intervention, Advocacy and outreach, and Compensatory Education Youth Program

Parent Information Center (PIC)

www.wpic.org

(307) 684-2277

Parent Information Center (PIC), is a statewide parent center for families of children with disabilities. PIC provides information, support and referrals to families on their rights and responsibilities under the special education law- the Individuals with Disabilities Education Act (IDEA). PIC provides support, information & resources, publications, workshops, and networking

Parent to Parent of Pennsylvania

www.parenttoparent.org

888-727-2706

P2P Pennsylvania is the largest mentoring program in the state for families who have children or adults with disabilities or special needs. We match families together on a one-to-one basis with a Peer Supporter for purposes of emotional support and information. Parent to Parent of PA can match for physical disabilities, developmental disabilities, special health care needs, behavioral/mental health concerns, foster care or adoption and educational issues.

Download our ESME app for a smoother experience.

Get the app Get the app