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Federation for Children With Special Needs/ Massachusetts Family Voices

fcsn.org

(617) 236-7210/(800) 331-0688

Aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care. We support families with children and youth with special health care needs by providing a forum for families to connect and share information and resources; advocating for improved systems of care for children and youth with special health care needs and developing opportunities to partner with health care professionals.

Idaho Parents Unlimited

www.ipulidaho.org

(208) 342-5884/(800) 242-IPUL (4785)

A statewide organization founded to provide support, information, and technical assistance to parents of children and youth with disabilities.

Bayou Land Families Helping Families

www.blfhf.org

(985) 447-4461/800-331-5570

A non-profit family resource center. They are a group of families who, through our own experiences, promote peer support and advocacy and are committed to alleviating hardships of other families who have members with disabilities or special needs.

Seven Hills Foundation

www.sevenhills.org

508.755.2340/TTY: 508.890.5584

Delivers integrated support for children with life challenges, enabling them and their families to learn and grow together. Seven Hills's professional staff utilizes the latest in evidence-based practices that are individualized and person-centered to help children achieve optimal health and wellness, developmental milestones, self-determination and community integration.

Families Helping Families of Baton Rouge

fhfgbr.org

225-216-7474/866-216-7474

A non-profit, family directed resource center for individuals with disabilities and their families. It is a place where families can go that is directed and staffed by parents or family members of children with disabilities or adults with disabilities. It is this common experience that gives Families Helping Families a very unique approach to serving families. FHF of Greater Baton Rouge offers these benefits: information and referral education; training parent to parent support

The Children with Special Needs Fund

www.michigan.gov

(517) 241-7420/(800) 359-3722

Provides support for children in Michigan with special health care needs not available through any other funding source. The Fund helps with the purchase of equipment and services that promote optimal health, mobility, and development, enhancing the lives of children and their families.

ASK (Access for Special Kids) Resource Center

askresource.org

515-243-1713

ASK (Access for Special Kids) Resource Center is a parent training, information, and advocacy center for families of children with special needs across the state of Iowa.

ChildServe

www.childserve.org

515.727.8750/515.232.7220

ChildServe partners with families to help children with special health care needs live a great life. They provide specialized pediatric health care services to more than 2,500 children in Iowa. Through the support of private insurance, public funds, and the generosity of donors, ChildServe offers accessible, family-centered care unique to each child’s needs, hopes, and dreams.

Families Together, Inc.

familiestogetherinc.org

(888) 815-6364/(316) 945-7747

Serving families of children and youth with disabilities and/or special health care needs from birth through 21 years old. Families Together assists parents and their sons and daughters with disabilities. Their mission is to encourage, educate, and empower families to be effective advocates for their own children.

TARC

www.tarcinc.org

(785) 232-0597

Provides comprehensive supports for infants and toddlers with developmental delays and to their families at no cost. Services are provided based on the children and families' needs.

Heartspring, Inc.

www.heartspring.org

316.634.8700/1.800.835.1043

Provides a wide range of services and therapies through several programs, including the Heartspring School and Heartspring Pediatric Services. The Heartspring School is a therapeutic residential and day school program for children with severe developmental disabilities. Additionally, the Heartspring School offers training and consultation services to parents and professionals.

Parent to Parent of Georgia

p2pga.org

800.229.2038

A variety of support, informational and educational services to Georgia families impacted by disabilities or special healthcare needs.

KY-SPIN (Kentucky Special Parent Involvement Network),

www.kyspin.com

(800) 525-7746/(502) 937-6894

Works statewide to empower and support individuals with disabilities and their families to effectively advocate for and access needed information, resources and support networks in order to enhance the quality of their lives.

Kentucky Commission for Children with Special Health Care Needs

chfs.ky.gov

800-372-2973/TTY:800-627-4702

Offers access to medical care and services for children and youth up to age 21 with disabilities or complex medical conditions. Services include hospitalization, surgery, dental care, care coordination, physical therapy, lab services, medication and non-emergency medical transportation.

The Special Parent Information Network (SPIN)

spinhawaii.org

(808) 586-8126

A parent to parent organization in Hawaii that provides information, support and referral to parents of children and young adults with disabilities and the professionals who serve them.

Learning Disabilities Association of Hawaii

www.kukuicenter.org

(808) 536-9684; (800) 533-9684.

To enhance education, work and life opportunities for children and youth with disabilities by empowering them and their families through information, training and mentoring, and by public outreach and advocacy.

FOCUS

www.focus-ga.org

770-234-9111

Offers comfort, hope, and fun to families with children who are medically fragile or have significant developmental or physical disabilities through a variety of programs.

Marcus Autism Center

www.marcus.org

404-785-9350

A not-for-profit organization and subsidiary of Children's Healthcare of Atlanta that treats more than 5,500 children with autism and related disorders a year.

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