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Search our 20 resource categories and browse our rich library of articles by moms who “get it.”
Parent Support Network of Rhode Island
401-467-6855/800-483-8844
The Parent Support Network is an organization of families supporting families with children, youth, and young adults who experience or are at risk for serious behavioral, emotional, and/or mental health challenges. PSN seeks to strengthen and preserve families and reduce family isolation by promoting positive mental health and well-being, and building a culturally and linguistically competent system of care, through advocacy, education, training, and increased public awareness.
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The Vermont Federation of Families for Children’s Mental Health
(802) 876-7021 (800) 639-6071
The Vermont Federation of Families for Children’s Mental Health exists to support families and children where a child or youth, age 0-22, is experiencing or at risk to experience emotional, behavioral, or mental health challenges. They empower and advocate for children, and help navigate state and national resources.
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Vermont Family Network
800.800.4005
Vermont Family Network provides information, support, advocacy, and promotes family-centered policies and practices. They help families understand their children’s special needs and work with others, such as their schools to ensure the needs are met.
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Utah Family Voices
801.272.1068
Utah Family Voices is all about supporting families of the disabled, and is run by parents of special needs children. Utah Family Voices provides statewide assistance in a variety of ways to families of CYSHCN and their professional providers and partners, including information and education so families can make informed decisions and advocate effectively for the needs of their child and family.
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The Utah Parent Center (UPC)
801.272.1051/Spanish: 800.468.1160
The Utah Parent Center (UPC) helps parents help their children, youth and young adults with all disabilities to live included, productive lives as members of the community. They have a resource library, events, and training. Servicios disponibles en Español.
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Children’s Special Services (CSS)
(615) 340-5697
Children’s Special Services (CSS) is a statewide program offered through the Tennessee Department of Health, which serves children birth to age 21 years, with chronic illnesses or disability needs. CSS provides financial assistance for medical bills, prescriptions, durable medical equipment, etc., and case management services related to a child’s special health care needs. Children who are uninsured, have TennCare, or private insurance may apply for assistance. Assistance is limited to treatment of chronic medical conditions covered by the program. The program does have financial eligibility guidelines that are based on family size and 200% of the Health and Human Services Federal Poverty Guidelines set for each year.
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The Tennessee Disability Coalition
(615) 383-9442
The Tennessee Disability Coalition is an alliance of organizations and individuals joined to promote the full and equal participation of people with disabilities in all aspects of life. The Coalition offers support and advocacy.
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South Dakota Parent Connection (SDPC)
800-640-4553
South Dakota Parent Connection (SDPC) connects families caring for children with the full range of disabilities or special health care needs to information, training and resources in an environment of support, hope and respect. SDPC offers: Individual assistance is provided to families and professionals serving their children, workshops for families and professionals are offered throughout the state, electronic and printed publications and online resources, links families to other organizations that can provide assistance to meet their unique needs.
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Parent to Parent of Georgia
800.229.2038
A variety of support, informational and educational services to Georgia families impacted by disabilities or special healthcare needs.
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Families Together
866-326-4864/208-874-7891
Families Together provides families with resources and support that build and maintain strong, healthy, informed, and actively involved family members who can work together to improve the life long outcomes for their child or their sibling with a disability. It is the Parent-to-Parent (P2P) program
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Idaho Parents Unlimited
(208) 342-5884/(800) 242-IPUL (4785)
A statewide organization founded to provide support, information, and technical assistance to parents of children and youth with disabilities.
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Family Network on Disabilities (FND)
(727) 523-1130 / (800) 825-5736
FND is a grassroots organization for persons with disabilities and their families that is family-centered and family-driven. The mission of FND is to strive for the complete integration and equality of persons with disabilities in a society without barriers and to serve families of children with disabilities, ages birth through 26, who have the full range of disabilities.
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Marcus Autism Center
404-785-9350
A not-for-profit organization and subsidiary of Children's Healthcare of Atlanta that treats more than 5,500 children with autism and related disorders a year.
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The Special Parent Information Network (SPIN)
(808) 586-8126
A parent to parent organization in Hawaii that provides information, support and referral to parents of children and young adults with disabilities and the professionals who serve them.
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Learning Disabilities Association of Hawaii
(808) 536-9684; (800) 533-9684.
To enhance education, work and life opportunities for children and youth with disabilities by empowering them and their families through information, training and mentoring, and by public outreach and advocacy.
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FOCUS
770-234-9111
Offers comfort, hope, and fun to families with children who are medically fragile or have significant developmental or physical disabilities through a variety of programs.
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Rehabilitation Institute of Chicago (RIC)
312.238.5433
The LIFE Center provides resources to parents and adolescents including: local, regional, national, and international community resources, government programs, and condition–specific organizations for life long needs of people with disabilities. LIFE Educators are available by phone or online. The center serves as the largest source of information for people with disabilities in the world.
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The Arc of Illinois
815-464-1832
Community-based organization advocating for and serving people with intellectual and developmental disabilities and their families. They encompass all ages and all spectra from autism, Down syndrome, Fragile X and various other developmental disabilities.
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