HIE Help Center
The HIE Help Center provides information and educational materials to parents and families of children with HIE to help them navigate the diagnosis
Special Needs Resource Project
Provides a national database of resources for kids with special needs.
Special Needs Alliance
Special needs, special attorneys
The Child Advocate
800-422-4453 (24 hour help line)
National resource bank for advocate groups for children with disabilities.
Technical Assistance Alliance for Parent Centers
Parent Centers – Parent Training and Information Centers and Community Parent Resource Centers – provide training and assistance to the families of the nation’s seven million children with disabilities. They are funded through the U.S. Department of Education under the Individuals with Disabilities Education Act (IDEA). Every state has at least one Parent Center, and those with large populations may have more.
A Walk on Water
A Walk on Water (AWOW) is a group that provides surf therapy to children of all disabilities, to let everyone experience the ”stoke” of surfing.
The Utah Parent Center (UPC)
The Utah Parent Center (UPC) helps parents help their children, youth and young adults with all disabilities to live included, productive lives as members of the community. They have a resource library, events, and training. Servicios disponibles en Español.
Utah Family Voices
Utah Family Voices is all about supporting families of the disabled, and is run by parents of special needs children. Utah Family Voices provides statewide assistance in a variety of ways to families of CYSHCN and their professional providers and partners, including information and education so families can make informed decisions and advocate effectively for the needs of their child and family.
Vermont Family Network
Vermont Family Network provides information, support, advocacy, and promotes family-centered policies and practices. They help families understand their children’s special needs and work with others, such as their schools to ensure the needs are met.
The Vermont Federation of Families for Children’s Mental Health
(802) 876-7021 (800) 639-6071
The Vermont Federation of Families for Children’s Mental Health exists to support families and children where a child or youth, age 0-22, is experiencing or at risk to experience emotional, behavioral, or mental health challenges. They empower and advocate for children, and help navigate state and national resources.
The Partnership for People with Disabilities
The Partnership for People with Disabilities works to build communities where all people can live, learn, work and play together and to equip family members, health care providers, preschool teachers, child care providers, and others serving who serve infants and young children and their families with the awareness, knowledge, and skills through technical assistance and training needed to make a difference in their lives.
Parent Educational Advocacy Training Center
The Parent Educational Advocacy Training Center assists the families of children with disabilities through education, information, and training. They offer services and support for families and professionals, easy-to-understand, research-based information and training, opportunities for strategic partnerships and advocacy for systemic improvement
Partnerships for Action, Voices for Empowerment (PAVE)
A parent organization providing support, advocacy, training and informational resources to empower families and individuals with disabilities.
Open Doors for Multicultural Families
The mission of Open Doors for Multicultural Families is to ensure that diverse families who have family members with developmental disabilities and special health care needs have equal access to culturally and linguistically appropriate information, resources, and services. We promote family services and culturally competent services through community collaboration, training and partnerships.
The Arc of the Three Rivers, Inc.
The Arc of the Three Rivers, Inc. is a behavioral health organization that serves children and adults with intellectual disabilities and developmental disabilities (ID/DD). The Arc of The Three Rivers provides caregiver and residential services and case management.
FAMILY VOICES OF WISCONSIN
FAMILY VOICES OF WISCONSIN is a statewide network of families who have children with special health care needs and disabilities and those who work on their behalf. The focus of our work is health care access, coverage and supports and services for children with special needs.
Wisconsin Family Assistance Center for Education, Training & Support (“WI FACETS”)
WI FACETS is a leading source of information and support in Wisconsin for children and youth who have special needs, their families and others who support them. WI facets provides 5 core services to help parents and others support and enrich the lives of children with disabilities: information and referral, support groups, parent leadership, individual assistance, youth leadership development
Parent Information Center (PIC),
Parent Information Center (PIC), is a statewide parent center for families of children with disabilities. We help families understand their child’s disability and support them in working as partners with schools and service providers to receive better education programs and services for their children.