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Search our 20 resource categories and browse our rich library of articles by moms who “get it.”
The Vermont Federation of Families for Children’s Mental Health
(802) 876-7021 (800) 639-6071
The Vermont Federation of Families for Children’s Mental Health exists to support families and children where a child or youth, age 0-22, is experiencing or at risk to experience emotional, behavioral, or mental health challenges. They empower and advocate for children, and help navigate state and national resources.
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Vermont Family Network
800.800.4005
Vermont Family Network provides information, support, advocacy, and promotes family-centered policies and practices. They help families understand their children’s special needs and work with others, such as their schools to ensure the needs are met.
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Utah Family Voices
801.272.1068
Utah Family Voices is all about supporting families of the disabled, and is run by parents of special needs children. Utah Family Voices provides statewide assistance in a variety of ways to families of CYSHCN and their professional providers and partners, including information and education so families can make informed decisions and advocate effectively for the needs of their child and family.
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The Utah Parent Center (UPC)
801.272.1051/Spanish: 800.468.1160
The Utah Parent Center (UPC) helps parents help their children, youth and young adults with all disabilities to live included, productive lives as members of the community. They have a resource library, events, and training. Servicios disponibles en Español.
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Children’s Special Services (CSS)
(615) 340-5697
Children’s Special Services (CSS) is a statewide program offered through the Tennessee Department of Health, which serves children birth to age 21 years, with chronic illnesses or disability needs. CSS provides financial assistance for medical bills, prescriptions, durable medical equipment, etc., and case management services related to a child’s special health care needs. Children who are uninsured, have TennCare, or private insurance may apply for assistance. Assistance is limited to treatment of chronic medical conditions covered by the program. The program does have financial eligibility guidelines that are based on family size and 200% of the Health and Human Services Federal Poverty Guidelines set for each year.
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Support and Training for Exceptional Parents (STEP).
423.639.0125/800.280.STEP/Español:800.975.2919/TTY: 423.639.8802
STEP’s mission is to empower parents through information, training and support to become effective partners with professionals in planning appropriate educational programs for their children.
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The Pathfinder Parent Center
701-837-7500/800-245-5840/TDD: 701-837-7501
The Pathfinder Parent Center helps families and schools understand the nature and needs of a child's condition, get information on how to parent children with special needs, work together to create individualized education programs, establish positive home/school communication, participate in educational decision-making processes, and support parents.
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Family Voices of North Dakota
888-522-9654/701-493-2634
A health information and education center for families who have children with special health care needs: disability, chronic illness, physical or mental health conditions. Through this national network, Family Voices provides families tools to make informed decisions, advocates for improved public and private policies, builds partnerships among professionals and families, and serves as a trusted resource on health care.
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Special Needs Resource Directory of Southwest Ohio
513-636-7606
Special Needs Resource Directory of Southwest Ohio, developed by the Center for Infants and Children with Special Needs at Cincinnati Children's Hospital Medical Center, includes information on issues related to advocacy, assistive technology, community services, dental care, education, employment, estate and future planning, financial assistance, guardianship, home health care, mental health, MR/DD services, nutrition resources, summer programming, therapies, transition issues, transportation, and wish-granting organizations.
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FACTOregon (Family & Community Together)
888-988-3228/(503) 786-6082
FACTOregon is a family leadership organization for individuals and their families experiencing disabilities, working collaboratively to facilitate positive change in policies, systems, and attitudes, through family support, advocacy, and partnerships. FACT strives to: Strengthen the voice of Oregon families raising children experiencing disability; Connect families to families; Provide and promote peer-delivered family support; Create opportunities for meaningful collaboration.
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The Oregon Family to Family Health Information Center
855-323-6744/Spanish: 503-931-8930
The Oregon Family to Family Health Information Center (F2F HIC) provides information to families who are navigating the complex world of special health care needs. The Oregon F2F HIC is a network of parents who have firsthand experience raising a child or youth with a chronic health condition, developmental delay or disability, or emotional/behavioral challenges. Services include a toll-free number throughout Oregon that parents, caregivers and others can call for support, resources, and information regarding special needs. The Oregon F2F HIC also provides informational workshops, a monthly newsletter, and a website clearinghouse of federal and state programs related to special needs.
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The Oklahoma Family Network (OFN) Family-to-Family Health Information Center
405-271-5072/877-871-5072
A center which is devoted to family centered care and one-to-one support for families of children with special health care needs and disabilities. OFN informs and connects individuals with special health care needs and disabilities, their families and professionals to services and supports in their communities. OFN supports families in navigating the maze of health care and other supports, and provides opportunities to strengthen your community through leadership development and volunteering
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The Oklahoma Parents Center
(405) 379-6015
The Oklahoma Parents Center is a statewide parent training and information center serving parents of children with disabilities whose goal is to educate and support parents, families and professionals in building partnerships that meet the needs of children and youth with the full range of disabilities ages birth to 26
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The Ohio Coalition for the Education of Children with Disabilities (OCECD)
800.374.2806
OCECD’s programs help parents become informed and effective representatives for their children in all educational settings. In addition, youth are assisted to advocate for themselves. Through knowledge about laws, resources, rights and responsibilities, families are better able to work with agencies to ensure that appropriate services are received.
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Family Voices of Ohio
614-543-9000 ext. 217
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities and to assure high quality comprehensive, affordable, community-based, culturally competent, family centered health care to all children, but especially those with special needs
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Parent to Parent of Georgia
800.229.2038
A variety of support, informational and educational services to Georgia families impacted by disabilities or special healthcare needs.
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FOCUS
770-234-9111
Offers comfort, hope, and fun to families with children who are medically fragile or have significant developmental or physical disabilities through a variety of programs.
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Marcus Autism Center
404-785-9350
A not-for-profit organization and subsidiary of Children's Healthcare of Atlanta that treats more than 5,500 children with autism and related disorders a year.
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