Need support?
Search our 20 resource categories and browse our rich library of articles by moms who “get it.”
The Special Parent Information Network (SPIN)
(808) 586-8126
A parent to parent organization in Hawaii that provides information, support and referral to parents of children and young adults with disabilities and the professionals who serve them.
Rating:
Learning Disabilities Association of Hawaii
(808) 536-9684; (800) 533-9684.
To enhance education, work and life opportunities for children and youth with disabilities by empowering them and their families through information, training and mentoring, and by public outreach and advocacy.
Rating:
The Children with Special Needs Fund
(517) 241-7420/(800) 359-3722
Provides support for children in Michigan with special health care needs not available through any other funding source. The Fund helps with the purchase of equipment and services that promote optimal health, mobility, and development, enhancing the lives of children and their families.
Rating:
Seven Hills Foundation
508.755.2340/TTY: 508.890.5584
Delivers integrated support for children with life challenges, enabling them and their families to learn and grow together. Seven Hills's professional staff utilizes the latest in evidence-based practices that are individualized and person-centered to help children achieve optimal health and wellness, developmental milestones, self-determination and community integration.
Rating:
Federation for Children With Special Needs/ Massachusetts Family Voices
(617) 236-7210/(800) 331-0688
Aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care. We support families with children and youth with special health care needs by providing a forum for families to connect and share information and resources; advocating for improved systems of care for children and youth with special health care needs and developing opportunities to partner with health care professionals.
Rating:
Family TIES of Massachusetts
(800)-905-TIES (8437)
Parents' Place of Maryland provides education, information, technical assistance, and supportive activities for the parents of children with disabilities throughout Maryland. conducts a variety programs for parents and families of children and youth with all disabilities, and the professionals working with them. The services provided through these programs are provided free to families of children and youth with all disabilities and/or special health care needs.
Rating:
Parents’ Place of Maryland
800.394.5694/410.768.9100
Parents' Place of Maryland provides education, information, technical assistance, and supportive activities for the parents of children with disabilities throughout Maryland. conducts a variety programs for parents and families of children and youth with all disabilities, and the professionals working with them. The services provided through these programs are provided free to families of children and youth with all disabilities and/or special health care needs.
Rating:
Southern Maine Parent Awareness (SMPA)
(207) 324-2337 or 2338/TollFree: (800) 564-9696
Southern Maine Parent Awareness (SMPA) is dedicated to providing information, referral support and education to families who have children and youth with special needs throughout Maine. SMPA helps families expand opportunities and enhance the quality of life for their children and young adults with disabilities.
Rating:
The Maine Parent Federation, Inc. (MPF)
800-870-7746/207-588-1933
A statewide organization that provides information, advocacy, education, and training to benefit all children. Provides information, referral, one on one telephone support, and training to parents of children with disabilities or special health care needs and the professionals who work with these families statewide at no cost to parents.
Rating:
Families Helping Families of Baton Rouge
225-216-7474/866-216-7474
A non-profit, family directed resource center for individuals with disabilities and their families. It is a place where families can go that is directed and staffed by parents or family members of children with disabilities or adults with disabilities. It is this common experience that gives Families Helping Families a very unique approach to serving families. FHF of Greater Baton Rouge offers these benefits: information and referral education; training parent to parent support
Rating:
PACER Center
800.537.2237 or 952.838.9000/TTY: 952.838.0190
PACER Center expands opportunities and enhances the quality of life for children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition with 18 disability organizations. Assistance to individual families, workshops, materials for parents and professionals, and leadership in securing a free and appropriate public education for all children.
Rating:
Mississippi Parent Training and Information Center (MSPTI)
(601)969-060/(800)721-7255
Helps teach about rights and responsibilities under the Individuals with Disabilities Education Act (IDEA), make informed decisions about your child's Individualized Education Program (IEP), obtain appropriate services for your child; Serving the entire state, their Parent Advisors are located in 5 geographical regions, serving specific counties.
Rating:
PACER Center
800.537.2237 or 952.838.9000/TTY: 952.838.0190
PACER Center expands opportunities and enhances the quality of life for children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition with 18 disability organizations. Assistance to individual families, workshops, materials for parents and professionals, and leadership in securing a free and appropriate public education for all children.
Rating:
Family Network on Disabilities (FND)
(727) 523-1130 / (800) 825-5736
FND is a grassroots organization for persons with disabilities and their families that is family-centered and family-driven. The mission of FND is to strive for the complete integration and equality of persons with disabilities in a society without barriers and to serve families of children with disabilities, ages birth through 26, who have the full range of disabilities.
Rating:
Marcus Autism Center
404-785-9350
A not-for-profit organization and subsidiary of Children's Healthcare of Atlanta that treats more than 5,500 children with autism and related disorders a year.
Rating:
FOCUS
770-234-9111
Offers comfort, hope, and fun to families with children who are medically fragile or have significant developmental or physical disabilities through a variety of programs.
Rating:
Parent to Parent of Georgia
800.229.2038
A variety of support, informational and educational services to Georgia families impacted by disabilities or special healthcare needs.
Rating:
Michigan Family to Family Health Information Center
(517) 324-7396 or (517) 324-8391
Michigan Family to Family Health Information Center provides information and education on disability and health-related issues to families of children and youth with special health care needs and the professionals who serve them. They provide families with the tools to make informed decisions and help build partnerships between professionals and families to improve quality of services for children and youth with special health care needs.
Rating:
