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Search our 20 resource categories and browse our rich library of articles by moms who “get it.”
The Utah Parent Center (UPC)
801.272.1051/Spanish: 800.468.1160
The Utah Parent Center (UPC) helps parents help their children, youth and young adults with all disabilities to live included, productive lives as members of the community. They have a resource library, events, and training. Servicios disponibles en Español.
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The Oklahoma Family Network (OFN) Family-to-Family Health Information Center
405-271-5072/877-871-5072
A center which is devoted to family centered care and one-to-one support for families of children with special health care needs and disabilities. OFN informs and connects individuals with special health care needs and disabilities, their families and professionals to services and supports in their communities. OFN supports families in navigating the maze of health care and other supports, and provides opportunities to strengthen your community through leadership development and volunteering
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The Oklahoma Parents Center
(405) 379-6015
The Oklahoma Parents Center is a statewide parent training and information center serving parents of children with disabilities whose goal is to educate and support parents, families and professionals in building partnerships that meet the needs of children and youth with the full range of disabilities ages birth to 26
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The Ohio Coalition for the Education of Children with Disabilities (OCECD)
800.374.2806
OCECD’s programs help parents become informed and effective representatives for their children in all educational settings. In addition, youth are assisted to advocate for themselves. Through knowledge about laws, resources, rights and responsibilities, families are better able to work with agencies to ensure that appropriate services are received.
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Family Voices of Ohio
614-543-9000 ext. 217
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities and to assure high quality comprehensive, affordable, community-based, culturally competent, family centered health care to all children, but especially those with special needs
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Special Needs Resource Directory of Southwest Ohio
513-636-7606
Special Needs Resource Directory of Southwest Ohio, developed by the Center for Infants and Children with Special Needs at Cincinnati Children's Hospital Medical Center, includes information on issues related to advocacy, assistive technology, community services, dental care, education, employment, estate and future planning, financial assistance, guardianship, home health care, mental health, MR/DD services, nutrition resources, summer programming, therapies, transition issues, transportation, and wish-granting organizations.
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The Pathfinder Parent Center
701-837-7500/800-245-5840/TDD: 701-837-7501
The Pathfinder Parent Center helps families and schools understand the nature and needs of a child's condition, get information on how to parent children with special needs, work together to create individualized education programs, establish positive home/school communication, participate in educational decision-making processes, and support parents.
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Family Voices of North Dakota
888-522-9654/701-493-2634
A health information and education center for families who have children with special health care needs: disability, chronic illness, physical or mental health conditions. Through this national network, Family Voices provides families tools to make informed decisions, advocates for improved public and private policies, builds partnerships among professionals and families, and serves as a trusted resource on health care.
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Family Support Network of North Carolina (FSN-NC)
800.852.0042
A division of the Family Support Program at UNC School of Social Work (http://fsp.unc.edu), the FSN-NC promotes and provides support for families with children who have special needs by putting you in touch with other parents with similar experiences, providing a "listening ear,” helping you become a volunteer Support Parent and connecting you to resources in your community. All services are free and confidential.
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North Carolina Families United
(336) 395-8828
A family support and advocacy organization that links families to state and community partners for the purpose of improving the lives of children, youth, and families with emotional, behavioral, or mental health needs.
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Texas Parent to Parent
866-896-6001/512-458-8600
Provides peer support, resource, and referral information and advocacy.
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Partners Resource Network (PRN)
409.898.4684/800.866.4726
Partners Resource Network (PRN) is a non-profit agency that operates the Texas statewide network of Parent Training and Information Centers (PTI). The PTI Projects are: PATH, PEN, and TEAM. The Texas PTIs provide training, education, information, referral, emotional support, and individual assistance in obtaining appropriate services.
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UPLIFT
(307) 778-8686/(888) 875-4383
UPLIFT works with youths ages 0 to 26 and their families with advocacy, care coordination, support, and training.
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Parent Information Center (PIC),
(307) 684-2277
Parent Information Center (PIC), is a statewide parent center for families of children with disabilities. We help families understand their child’s disability and support them in working as partners with schools and service providers to receive better education programs and services for their children.
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Wisconsin Family Assistance Center for Education, Training & Support (“WI FACETS”)
414-374-4645/877-374-0511
WI FACETS is a leading source of information and support in Wisconsin for children and youth who have special needs, their families and others who support them. WI facets provides 5 core services to help parents and others support and enrich the lives of children with disabilities: information and referral, support groups, parent leadership, individual assistance, youth leadership development
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FAMILY VOICES OF WISCONSIN
608-220-9598/ 608-239-1364
FAMILY VOICES OF WISCONSIN is a statewide network of families who have children with special health care needs and disabilities and those who work on their behalf. The focus of our work is health care access, coverage and supports and services for children with special needs.
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The Arc of the Three Rivers, Inc.
304.344.3403
The Arc of the Three Rivers, Inc. is a behavioral health organization that serves children and adults with intellectual disabilities and developmental disabilities (ID/DD). The Arc of The Three Rivers provides caregiver and residential services and case management.
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Open Doors for Multicultural Families
(253) 565-2266/800-5-PARENT
The mission of Open Doors for Multicultural Families is to ensure that diverse families who have family members with developmental disabilities and special health care needs have equal access to culturally and linguistically appropriate information, resources, and services. We promote family services and culturally competent services through community collaboration, training and partnerships.
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