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The Rhode Island Parent Information Network (RIPIN)

www.ripin.org

401.270.0101/800.464.3399

The Rhode Island Parent Information Network (RIPIN) is a statewide, nonprofit agency that provides information, training, support, and advocacy to parents seeking help for their children. RIPIN offers: Telephone support, RIPIN resource center assistance, Mentoring. "Know Your Rights" special education workshops, RI Special Education. Transition to adulthood support for children in special education, Workshops, training, and technical assistance for educators and parents.

Parent Support Network of Rhode Island

www.psnri.org

401-467-6855/800-483-8844

The Parent Support Network is an organization of families supporting families with children, youth, and young adults who experience or are at risk for serious behavioral, emotional, and/or mental health challenges. PSN seeks to strengthen and preserve families and reduce family isolation by promoting positive mental health and well-being, and building a culturally and linguistically competent system of care, through advocacy, education, training, and increased public awareness.

Family Connection of South Carolina

www.familyconnectionsc.org

800.578.8750/Espanol: 1.888.808.7462

Family Connection of South Carolina is a network for families who have children with developmental delays, disabilities, or chronic illnesses. Family Connection provides parent-to-parent connections, linking families to community resources, and sponsoring a number of educational and support programs. Programs are free and confidential.

Parents Reaching Out to Parents of South Carolina (PRO-Parents of S. C.)

proparents.org

800-759-4776

PRO-Parents of SC is non-profit organization and the parent training and information center (PTI) for South Carolina. Services are provided state-wide through community training events and one-on-one assistance to families and others who work with or support families in their quest to pursue early intervention and education services for their child.

South Dakota Parent Connection (SDPC)

www.sdparent.org

800-640-4553

South Dakota Parent Connection (SDPC) connects families caring for children with the full range of disabilities or special health care needs to information, training and resources in an environment of support, hope and respect. SDPC offers: Individual assistance is provided to families and professionals serving their children, workshops for families and professionals are offered throughout the state, electronic and printed publications and online resources, links families to other organizations that can provide assistance to meet their unique needs.

The Tennessee Disability Coalition

www.tndisability.org

(615) 383-9442

The Tennessee Disability Coalition is an alliance of organizations and individuals joined to promote the full and equal participation of people with disabilities in all aspects of life. The Coalition offers support and advocacy.

Support and Training for Exceptional Parents (STEP).

www.tnstep.org

423.639.0125/800.280.STEP/Español:800.975.2919/TTY: 423.639.8802

STEP’s mission is to empower parents through information, training and support to become effective partners with professionals in planning appropriate educational programs for their children.

Children’s Special Services (CSS)

www.nashville.gov

(615) 340-5697

Children’s Special Services (CSS) is a statewide program offered through the Tennessee Department of Health, which serves children birth to age 21 years, with chronic illnesses or disability needs. CSS provides financial assistance for medical bills, prescriptions, durable medical equipment, etc., and case management services related to a child’s special health care needs. Children who are uninsured, have TennCare, or private insurance may apply for assistance. Assistance is limited to treatment of chronic medical conditions covered by the program. The program does have financial eligibility guidelines that are based on family size and 200% of the Health and Human Services Federal Poverty Guidelines set for each year.

Family Network on Disabilities (FND)

fndusa.org

(727) 523-1130 / (800) 825-5736

FND is a grassroots organization for persons with disabilities and their families that is family-centered and family-driven. The mission of FND is to strive for the complete integration and equality of persons with disabilities in a society without barriers and to serve families of children with disabilities, ages birth through 26, who have the full range of disabilities.

Marcus Autism Center

www.marcus.org

404-785-9350

A not-for-profit organization and subsidiary of Children's Healthcare of Atlanta that treats more than 5,500 children with autism and related disorders a year.

FOCUS

www.focus-ga.org

770-234-9111

Offers comfort, hope, and fun to families with children who are medically fragile or have significant developmental or physical disabilities through a variety of programs.

Parent to Parent of Georgia

p2pga.org

800.229.2038

A variety of support, informational and educational services to Georgia families impacted by disabilities or special healthcare needs.

Learning Disabilities Association of Hawaii

www.kukuicenter.org

(808) 536-9684; (800) 533-9684.

To enhance education, work and life opportunities for children and youth with disabilities by empowering them and their families through information, training and mentoring, and by public outreach and advocacy.

The Special Parent Information Network (SPIN)

spinhawaii.org

(808) 586-8126

A parent to parent organization in Hawaii that provides information, support and referral to parents of children and young adults with disabilities and the professionals who serve them.

Idaho Parents Unlimited

www.ipulidaho.org

(208) 342-5884/(800) 242-IPUL (4785)

A statewide organization founded to provide support, information, and technical assistance to parents of children and youth with disabilities.

Families Together

www.familiestogether.org

866-326-4864/208-874-7891

Families Together provides families with resources and support that build and maintain strong, healthy, informed, and actively involved family members who can work together to improve the life long outcomes for their child or their sibling with a disability. It is the Parent-to-Parent (P2P) program

Rehabilitation Institute of Chicago (RIC)

www.ric.org

312.238.5433

The LIFE Center provides resources to parents and adolescents including: local, regional, national, and international community resources, government programs, and condition–specific organizations for life long needs of people with disabilities. LIFE Educators are available by phone or online. The center serves as the largest source of information for people with disabilities in the world.

The Arc of Illinois

www.thearcofil.org

815-464-1832

Community-based organization advocating for and serving people with intellectual and developmental disabilities and their families. They encompass all ages and all spectra from autism, Down syndrome, Fragile X and various other developmental disabilities.

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